2026 Snowflake Shuffle Recap!

Posted by Giselle Murillo

 

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❄️2026 Snowflake Shuffle Recap!❄️

The 14th Annual Snowflake Shuffle for MG was a bright, feel-good day full of connection and community. Friends, families, and supporters came out to Berens Park to raise awareness for Myasthenia Gravis and show up for the people affected by it. The vibe was relaxed and positive, with people chatting, cheering, and just enjoying being together for a good cause.
The raffle was a big hit, and tickets went fast. Alicia did an awesome job as emcee and kept things moving with great energy. We had amazing prizes from our generous donors, and all of the winners were happy. From start to finish, it all felt easy, fun, and meaningful.

One of the most memorable parts of the day was honoring two amazing advocates with the Tracy Shackelford MG Service Award. Bob Rosecrans has made a huge impact in the Myasthenia Gravis community through his leadership and care. Everyone was proud to celebrate his work and the difference he has made.

The event also created space for people who were newly diagnosed or just learning about Myasthenia Gravis to meet others and feel supported. The MG Experience stations gave people a hands-on way to understand what living with MG can feel like. With vision-blurring glasses, ankle and wrist weights, and a few quirky challenges, participants got a real sense of the physical struggles that come with the condition. It was eye-opening in the best way. Kelly Aiken ran the new Human Slot Machine, as another engaging way to raise money for a cause!

The whole day wrapped up with new friendships, lots of laughs, and a strong sense of community. Whether people were walking the course, trying out the MG stations, or just soaking in the sunshine, it felt like everyone left with more understanding and a deeper connection.

Myasthenia Gravis can be a hard journey, but this event reminded everyone that no one has to go through it alone.

 

argenx Announces U.S. FDA Approval Expanding VYVGART and VYVGART Hytrulo for Use in All Adult Patients Living with gMG

Posted by Giselle Murillo

argenx | argenx Announces U.S. FDA Approval Expanding VYVGART and VYVGART Hytrulo for Use in All Adult Patients Living with gMG

We are pleased to share an important update from argenx regarding the treatment landscape for generalized myasthenia gravis (gMG).

The U.S. Food and Drug Administration (FDA) has approved a label expansion for VYVGART (efgartigimod alfa-fcab) and VYVGART Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to include all adult patients living with gMG, regardless of antibody status. This means the therapies are now approved for patients who are anti-AChR antibody positive, anti-MuSK antibody positive, anti-LRP4 antibody positive, as well as those who are triple seronegative.

This approval is based on results from the Phase 3 ADAPT SERON study, which demonstrated rapid, statistically significant, and clinically meaningful improvements in daily functioning compared to placebo. Improvements were observed across symptoms impacting daily life, including speech, vision, swallowing, and physical function.

This milestone is particularly meaningful for individuals who do not have detectable AChR antibodies—a community that has historically faced limited inclusion in clinical research and fewer targeted treatment options.

We recognize the important role you play in supporting individuals living with MG and are committed to keeping you informed as new developments emerge.

Monica Seles Speaks Out About Living with Myasthenia Gravis and partners with argenx in the Go for Greater initiative

Posted by Giselle Murillo

 

Nine-time Grand Slam champion Monica Seles has revealed her diagnosis with myasthenia gravis (MG), which she has been living with since 2022.

She first noticed symptoms such as double vision and weakness in her arms and legs, which made everyday tasks difficult, and is now using her platform to educate and support others.

Partnering with argenx’s Go for Greater initiative, Seles hopes to raise awareness, connect patients with support resources, and inspire advocacy in the MG community. “I can raise awareness of this disease, empower patients to advocate for themselves, and help them connect with the MG community,” she says.

 

 

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