Archive – Hot Topics

Useful information…at your fingertips.

Topic

Title

Contributor

Published

Financial assistance for MG patients – Sept 30 2022Staff2022 Sept
MG Activities of Daily Living (MG-ADL) ScaleKourosh Rezania, MD2022 Sept
Patient Experience with PyridostigmineStaff2022 Sept
Update – Myasthenia Gravis and CoronavirusConquer MG Medical Advisory Board2020 Dec
Myasthenia Gravis and TelemedicineRabia Malik, MD2022 Oct
MG Clinical Trials: Your Questions AnsweredRabia Malik, MD2020 Jan
IVIg, Plasma Exchange, and Emerging MG TreatmentsRyan Jacobson, MD2019 July
Men’s & Women’s Issues and Myasthenia GravisDavid Randall, DO2018 Feb
MG and Vision IssuesThomas Mizen, MD2017 Feb
Myasthenia Gravis & Drug InteractionsMitra Habibi, PharmD2017 Jan
8 Ways to Optimize Immune Health NaturallyJulie Rowin, MD2020 Apr
Wellness Now: Own Your Health In a COVID-19 WorldMaria Zepeda, National Board Certified Health and Wellness Coach; Julie Rowin, MD2020 July
MG Wellness: Meditative BreathingYoga Instructor  Jill Crockett, Julie Rowin, MD2020 Sept
MG Wellness: Myasthenia Gravis and ExerciseJulie Hossack, ACE Certified Personal Trainer; Julie Rowin, MD2020 Sept
Most Popular: Exercise, Nutrition, MG Treatment, VisionStaff2020 Dec
Navigating the Disability Insurance MazeMark DeBofsky, Attorney2021 Mar
Financial assistance for MG patients – Sept 30 2022Staff2022 Sept
An MG Wall of HopeStaff2021 July
Conquer MG celebrates 50 years serving the MG CommunityVolunteers SeAndrea Ferguson, Victor Yipp2022 Apr

 

Financial assistance for MG patients – Sept 30 2022

How to diagnose Myasthenia Gravis (MG)?

Are medical costs overwhelming you? These programs may provide relief. Click the links to learn about who’s eligible and what each program covers.

Status (open/ waitlisting/ closed) is current as of September 30, 2022:

The Assistance Fund is accepting new enrollments for individuals who have myasthenia gravis. This program helps with out-of-pocket medical costs.

The National Organization for Rare Diseases (NORD)‘s financial assistance program is temporarily waitlisting MG patients. (In other words, get on the waitlist.) NORD helps with the cost of insurance premiums, office visits, medications, and other for myasthenia gravis patients. Click here for waitlisting updates.

The PAN Foundation fund for myasthenia gravis patients is currently closed, but you can sign up to be notified when the program resumes support for MG patients.

Conquer MG’s Patient Assistance Program has supported MG patients since 2014. Medical costs up to $1,000 may be reimbursed if you have an MG diagnosis; live in Illinois, Indiana, or Wisconsin; and have financial need. Applications for 2022 are being accepted.

Other Resources

NeedyMeds is dedicated to helping people who cannot afford medicine or health care costs.

RxAssist offers a database of patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need.

The Medical Assistance Tool is a search engine tool sponsored by PhRMA; it can help you find many of the patient assistance resources that the biopharmaceutical industry offers.

MG Activities of Daily Living (MG-ADL) Scale

With a disease like myasthenia that fluctuates from day to day and even more from month to month, it can be challenging to get a clear picture of a person’s illness. Your doctor can assess your myasthenia with several different tracking tools. One of these measures is called the MG Activities of Daily Living scale, or the MG-ADL.

The MG-ADL scale assesses the impact of MG on your daily functions. Physicians use this tool to score a patient’s MG symptoms based on the patient’s recall of symptoms during the prior week. A person’s score can range from zero (normal) to 24 (most severe).

You can use this tool as well. Click here for a downloadable copy.