Rare Disease Week is a multi-day event, hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), that brings together rare disease advocates from across the country to make their voices heard. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for… Read more »
Posts Categorized: blog
From Our Support Group Leaders
Explaining myasthenia gravis (MG) to others can be challenging. We asked our support group leaders how they explain MG to people who are unfamiliar with the condition. Kelly Aiken There are two versions of this autoimmune neuromuscular disease. One version is ocular which can cause symptoms such as ptosis, double vision, and blurry vision. The… Read more »
SeAndrea Ferguson, Board of Trustees
Meet New Board Member SeAndrea Ferguson SeAndrea Ferguson is a wife, a mom, a teacher, an individual living with myasthenia gravis (MG) and member of Conquer MG’s Board of Trustees. She enjoys listening to music, reading, watching her favorite shows, and spending time with her amazing family and good friends. Q: Where do you call… Read more »
